This is a tabloid trick perhaps but one might ask how this situation arises, when ASH Scotland is guaranteed an income that would pay for the treatment discussed here for four people.
In the real world, of course, this is about rationing treatment. I have no idea what factors are built into decisions that allow some people funding for this kind of condition and not others. It is quite clear that the pot paying for drugs is not bottomless and hard decisions have to be made. The drug in question has not been approved by the Scottish Medical Council, but arrangements have been made successfully for at least one patient in Scotland to receive it.
SMC refused to approve eculizumab for use on the NHS last November. Professor Peter Hillmen is a consultant haematologist and expert on PNH, who leads the only Scottish clinic for patients with the condition as well as heading up a key treatment base for the illness in Leeds. He said: “I have two to three patients in Glasgow who are not funded. They are the only patients in the UK who do not have treatment.”
Incidentally I heard that the SNP have overtaken Labour in the polls – perhaps the popularity of this story helps to account for it. Having discovered that enforcing a smoking ban in the grounds of several hundred hospitals is next to impossible they now want to try it in the grounds of a few million motor cars